Associations & Support Groups

If you know of a good non-profit national Care Association in any country please contact us (admin@dementia-news.com) so that we can add it to the list, at present we can only provide those that we have found via manual searching on the net:

International:

• Alzheimer’s Disease International

Australia:

• Aged and Community Services
• Aged Care Association
• Alzheimer’s Association
• Care Connect
• Carer's Australia
• Commonwealth Carelink Centres
• Department of Health & Ageing

Europe:

• Alzheimer Europe

United Kindom:

• Carers.org U.K.
• Carers UK

United States:

• Alzheimer’s Association
• Alzheimer’s Foundation of America
• Dementia Caregiver Resources, Inc. -U.S
• Eldercare Locator
• Department of Health & Human Services - Aging
• Family Caregiver Alliance -U.S
• National Family Caregivers Association
• The Caregivers Army

Fact Sheets & Other Information

Alzheimer's Australia Help Sheet Links:

• Caring for Someone with Dementia

Alzheimer Europe Information:

• Tips for Carers

U.K. Alzheimer's Society Information:

• Caring for a person with Dementia

U.S. Alzheimer's Association Information:

• Caring for Alzheimer's

A-Z Issues Covered by the above information:
Activities, Additional Resources, Behaviours, Caring for someone who lives alone, Communication, Continence, Coping, Daily Care, Dental care, Dressing, Driving, Eating, Going to hospital, Hygiene, Intimacy and sexual issues, Later stages of dementia, Legal issues, Long term care, Making the most of Respite Care, Nutrition, Pain, Quality of Life, Safety issues, Sleeping, Therapies and communication approaches, Travelling, Working with doctors...

Relevant Videos from YouTube & Google & Other Websites

Note: Sometimes when one of these links are clicked on it will say ‘We’re sorry this video is no longer available’ or that it is temporarily not available. However, I have found that this does not necessarily mean that it will be impossible to access, give it 30 seconds or so, and then try clicking on the link again. If the link continually refuses to work, please email us at admin@dementia-news.com so that we can investigate the problem.

• 1.1 Alzheimer's Advocates: Remembering the Caregivers(10 minutes)
• Advice for carers of Alzheimer's sufferers(6.25 minutes)
• Burnout Among Caregivers + Sibling Rivalry (8.5 minutes)
• Care for the Caregiver(23minutes)
• Caregivers Generally(16.5 minutes)
• Caregivers of FTD patients(5.5 minutes)
• Caregiver Stress: A Special Problem in Care of Dementia (58 minutes)
• Caring for Your Parents Series Link (PBS)
• Dementias: Caregiving and diagnosis (36 seconds)
• Family Caregivers of Alzheimer's Patients(10 minutes)
• Living with Dementia(2 minutes)
• New tools help families deal with with drivers with dementia(4 minutes)
• SIRA: The Paradox of Alzheimer's Caregiving(47 minutes)
• Tips on changing the bed of a bedridden person (2 minutes)
• Tips for helping someone walk (1 minute)
• Tips on moving someone from the bed to a chair(1.5 minutes)
• Tips for helping someone sit up in bed(48 seconds)
• U.S. National Family Caregivers Association Information (2.5 minutes)

As you view each of these videos, note that other related video links can be seen down the side of the page. Also you can do your own search for relevant video, using the search function at the top of the page and entering the key words of the topic that you are interested in.

Books You May Be Interested In

Alzheimer's from the Inside Out
"A captivating read for anyone affected by this mind-robbing disease. Individuals with early-stage Alzheimer's disease will take comfort in the voice of a fellow traveler experiencing similar challenges, frustrations, and triumphs. Family and professional caregivers will be enlightened by Taylor's revealing words, gaining a better understanding of an unfathomable world and how best to care for someone living in it..."
U.S. Amazon
U.K.Amazon
Canadian Amazon
Fishpond Australia

Chicken Soup for the Caregiver's Soul: Stories to Inspire Caregivers in the Home, the Community and the World
"A dose of inspiration for caregiving professionals and the millions of souls who help care for family and friends...While rewarding, care giving requires tremendous emotional, physical and spiritual stamina. Chicken Soup for the Caregiver's Soul offers a respite to those who give care through inspiring and uplifting stories about the work they do and its power to transform lives. Through awe-inspiring glimpses of real-life experiences of others, readers will find the motivation to overcome a challenging day, welcome recognition for their selfless contributions, and the encouragement to continue making a positive difference in others' lives..."
U.S. Amazon
U.K. Amazon
Canadian Amazon
Fishpond Australia

Contented Dementia: 24-hour Wraparound Care for Lifelong Well-being
"Dementia is a little understood and currently incurable illness, but much can be done to maximise the quality of life for people with the condition. "Contented Dementia" - by clinical psychologist and bestselling author Oliver James - outlines a groundbreaking and practical method for managing dementia that will allow both sufferer and carer to maintain the highest possible quality of life, throughout every stage of the illness. A person with dementia will experience random and increasingly frequent memory blanks relating to recent events. Feelings, however, remain intact, as do memories of past events and both can be used in a special way to substitute for more recent information that has been lost.The SPECAL method (Specialized Early Care for Alzheimer's) outlined in this book works by creating links between past memories and the routine activities of daily life in the present. Drawing on real-life examples and user-friendly tried-and-tested methods, "Contented Dementia" provides essential information and guidance for carers, relatives and professionals..."
U.S. Amazon
U.K. Amazon
Canadian Amazon
Fishpond Australia


Learning to Speak Alzheimer's: A Groundbreaking approach for everyone dealing with the disease
When I read this book, I immediately recommended it and passed it onto my mother. She in turn bought several copies and gave them to other people she knew who were caring for dementia sufferers, as well as to the home my father went to for respite. It helps the reader come to terms with the disease, as well as understand the behaviours of a dementia sufferer. Written by the wife of an early onset dementia sufferer who is also a trained nurse. A truly brilliant book.
U.S. Amazon
U.K. Amazon
Canadian Amazon
Fishpond Australia

Poetry From The Heart By An Alzheimer's Caregiver
"Carolyn (Founder of the CaregiversArmy org.) started this journey by keeping a daily journal and from that her poetry started to flow and now a book The gift of writing these poems came out of the long, lonely journey with her husband Chuck who had Alzheimer's. The poems speak of the love, the struggles and the heartaches that a caregiver has to go through, taking care of a loved one. 'I was not a writer but felt inspired to write my feelings as it helped me get through the days and the years ahead. I was able to lose myself and get lost for a time in my writings. I pray that you can gain some understanding, and comfort as you read these poems.'..."
U.S. Amazon
U.K. Amazon
Canadian Amazon
Fishpond Australia

The Art of Dementia Care
"The Art of Dementia Care speaks not only to the mind, but to the heart and soul of its readers. It inspires and empowers caregivers by illuminating the limitless possibilities that truly exist when we choose the relationship model of care. Kuhn and Verity clearly illustrate how everyday challenges in caregiving can evolve into opportunities that celebrate residual abilities, and honor and uphold the dignity of persons with dementia. Through simple, practical and thoughtful examples, the Art of Dementia Care awakens its readers to the powerful realization “that you hold the key to the quality of someone else's life”. Imagine a world where we all shared this conviction..."
U.S. Amazon
U.K. Amazon
Canadian Amazon
Fishpond Australia

The Fearless Caregiver: How to Get the Best Care for Your Loved One and Still Have a Life of Your Own
"This book clearly defines your vital role in developing your loved one's care plan. It teaches you to deal successfully with managed care organizations, home health services, and especially your loved one; and arms you with the knowledge and skills you need for deciding if your loved one's care is appropriate, if your doctor is the right one, if something more is needed. From wills and powers-of-attorney, to practical tips for dealing with disabilities, to long term care options, to battling stress and depression -- the "shared wisdom" in this book comes not only from the experienced editors of Today's Caregiver Magazine, but also from the inspiring personal stories of readers of the magazine who have learned to "stand up to the system when the system no longer stands up for your loved one."
U.S. Amazon
U.K. Amazon
U.K. Amazon
Fishpond Australia

The 36 Hour Day: A Family Guide to Caring for Persons with Alzheimer Disease, Related Dementing Illnesses, and Memory Loss in Later Life
"When someone in your family suffers from Alzheimer's disease or other related memory loss diseases, both you and your loved one face immense challenges. For over 20 years this book has been the trusted bible for families affected by dementia disorders. This authoritative guie provides all the practical and specific advice you need to make care easier, improve quality of life and lift the whole family's spirits. It features the latest medical research and news on current delivery of care, with new appendices including website and association listings...."
U.S. Amazon
U.K. Amazon
Canadian Amazon
Fishpond Australia

When Your Loved One has Dementia: A Simple Guide for Caregivers
"A succinct, original tool for caregivers of people with Alzheimer disease and other dementias. Highly recommended."-Peter V. Rabins, Johns Hopkins Medical Institutions, and co-author, The 36-Hour Day; "This is a good beginning book for the person who is learning to care for someone with dementia. It is sensitive to the feelings and needs of the caregiver."-Nancy L. Mace, co-author, The 36-Hour Day"
U.S. Amazon
U.K. Amazon
Canadian Amazon
Fishpond Australia